If you’re a regular visitor to my blog, you know that Santorini is one of my favorite “mental travel” destinations. Well….I just got off the phone with my mom who happens to be traveling to Santorini in May….without me, of course. 😦 Someday I’ll get to go but, for now, I’ll just imagine myself enjoying a nice glass of wine on this terrace with friends.
I went to see my neurologist today and he must have read my recent post, “The Big Picture“, because I heard things coming out of his mouth that I’ve been wanting to hear from my doctors for a long time! First, my MRI was fine…..no sign of anything wrong. And….rather than push the anti-seizure medication, he wants to run a whole battery of tests to try to find out what the underlying problem(s) might be. Now, I have high cholesterol, and yet, I still have to insist on an annual cholesterol check, so….to have a doctor order all of these tests really blew me away! Considering what I’ve been through over the last year and a half, you’d think that a metabolic panel, a lipid panel, and a host of other tests would be a good idea but every time that I’ve mentioned them I get no response from my doctors. So…next week I’ll go in and have a bunch of tests done. I’ll also be meeting with a nutritionist at my neurologist’s office and I’ll have a TTE – (hang on, it’s a big word, let me look it up) – Trans Thoracic Echocardiogram. I haven’t done that one before so that oughta be fun.
Several of the tests that I’ll have done next week are for autoimmune diseases like Sjogren’s Syndrome, Lupus and Rheumatoid Arthritis. I have family history of autoimmune disease and I’ve been experiencing symptoms that suggest that these would be worth testing for. It was interesting, when I was reading about Sjogren’s Syndrome, that those with Sjogren’s are 44 times more likely to develop lymphoma! Perhaps it’s something that I’ve had for years without even knowing it! In reading about Lupus, I learned that seizures and anemia are common symptoms in those with lupus, as is Raynaud’s Phenomenon. I don’t have Raynaud’s myself but both of my daughters do, as well as several other relatives.
So that’s what I learned today….and I’m feeling a whole lot better about my neurologist. 😀